What do Ehlers-Danlos people look like?

Hmmm....... what do they look like, well like everyone else to a point. Ehlers-Danlos (EDS) people most of the time share similar things about there bodies. It is said that people with EDS have ears lobes that are connected to the head, thin pinched nose, skin that is thin where you can see veins like a road map (mainly on chest and back), soft velvet skin or doughy skin, joints that extend and flat footed. That's what I have found most look like but then there are all the boo boo's that we encounter everyday. Theses are pictures of my daughter.


Road map veins

Extended elbow

Flat footed

doughy skin
The next picture is of a time last year when Chloe got hit in the forehead with a baby play hammer. The bump and bruise in the middle of her forehead would come and go. One day it would be there and the next be gone this lasted for 2 weeks.

Tonight I have taken pictures of minor things that can happened over 2 weeks time. They do not heal well and scar very easily!


This last picture was not very good it is hard to see all the bruises, sores and scares. I should not fail to talk about bloody noses. Chloe has then all the time, she is a bleeder.
Theses are just the minor things that can happened. Then there is arterial, intestinal, and/or uterine fragility. Vascular rupture or dissection and gastrointestinal perforation or organ rupture. That's what the scary part is, what we can't see.
So what does a person with EDS look like......... my baby girl